Friday, June 4, 2010

Celiac in children...

I found out tonight that a great friend of mine is now going to be affected by Celiac Disease. Her very young child was diagnosed, confirmed with both a blood test and biopsy. I do not wish this on anybody, least of all a child.

This brings up some of my own fears about my own son Konnor. He will be turning 4 years old in July. Last summer during his three year check-up, I informed the doctor about my diagnosis a mere month and half earlier and asked if he should be tested since it is hereditary. The doctor told me he didn't feel testing was necessary because of his growth pattern. Now I am wondering if I should ask for at least a blood test. The only known symptom that Konnor has is constipation. I have been putting Miralax in his bottles/sippies for as long as I can remember. The doctor has always told me that this is completely normal for some kids and that most eventually outgrow it.

This will give me something to think about as I try to go to sleep tonight....

3 comments:

  1. Kristen thanks for talking to me last night. It was so good to hear you talk about it like living gluten free is easy or doable. I will be calling you and bothering you all summer. :)

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  2. Hi Kristin. I found your blog on Gluten Freeville on Facebook. I totally encourage you to test your child. My son was diagnosed with Celiac at 3 because of constipation. We have also been using miralax since he was 1 year old. He had remarkable progress and we took him off all year last year. He was potty trained and going every day. Then he had 3 rectal prolapses, and the doctors tested him for everything under the sun. Celiac was the last thing we thought he could have. He was constipated (3% of all cd patients) and is standing at almost 4 ft tall at 3. He has no skin issues and has never really had any illness or stomach flus. We were blown away to find out he had it. Our pediatrician insists that everyone in our family be tested too, so I am surprised that your doctor didn't want you to be tested. 3 is a good age to change to GFree because they don't really know the difference and we approached it as "special" food. He thinks he is the healthiest kid around. Hope that helps.

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  3. I would strongly encourage you to test your child. There are so many underlying problems with celiac disease and/or gluten sensitivity that may take years to appear as "symptoms". At least it would rule it out, and then you'd feel better about Cheerios.

    Welcome to the Celiac community! I've been diagnosed since 2005, and it has made an incredible positive change in my life. I've never felt better. :) I am sure you will feel the same once you settle into the groove of the gluten free lifestyle.

    Looking forward to reading your creative blog posts.

    Emily

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